Don't miss the 5th edition of Conexões Raras

Check out the 5th edition of Conexões Raras, the quarterly newsletter from Casa dos Raros that brings together the main news and advances in the area of rare diseases. In this edition, we highlight the international recognition of Dr. Roberto Giugliani, honored in Italy with the prestigious Life for MPS Award, an unprecedented milestone for Latin America. Celebrating achievements in public health, we address the inclusion of AME and SCID in the Rio Grande do Sul Foot Test, with exams operated by the Anthony Daher Laboratory at Casa dos Raros itself. We also bring discussions about the role of pet genetics in research on rare human diseases from the perspective of One Health, the challenges and perspectives of access to CAR-T Therapy in Brazilian oncology, and how neurodesign improves sensory accessibility in healthcare environments. Click here to read the publication.