courses and events
28th-31st October 2025 - Rio de JaneiroNews
South MPS Symposium 2025 gathers experts and families in Porto Alegre
from 28 to 30 November 2025, Porto Alegre will be the scene of the South MPS Symposium, a meeting that promises to unite science, health and welcome around the rare diseases of the Mucopolysacharides (MPs). The program highlights the participation...
Last days for registration at the Symposium on Mucopolysacchariaises in southern Brazil and Mercosur
Registration for the Symposium on Mucopolysachesiasis of Southern Brazil and Mercosur-2025 edition are open until October 31st. The meeting will be held from November 28 to 30, 2025, at Plaza São Rafael Hotel, in Porto Alegre (RS). Aimed at...
Psychology: How to deal with the diagnosis of a rare disease?
receiving the diagnosis of a rare disease is always a striking moment, loaded with uncertainty and need for adaptation. The challenge, according to psychologist Daniele Lima Rocha, is to welcome emotions and seek lighter paths. The psychologist...
Diagnosis: a basic right
by Andreia Bessa - Legal Consultant of the Rare House early diagnosis is a fundamental right of people with rare diseases and represents the starting point for access to treatment, social inclusion and full human dignity. In Brazil, more than 13...
