Check out the 5th edition of Conexões Raras, the quarterly newsletter from Casa dos Raros that brings together the main news and advances in the area of rare diseases. In this edition, we highlight the international recognition of Dr. Roberto...
The fourth edition of Conexões Raras, a quarterly newsletter from Casa dos Raros, is now in circulation. The publication features articles on sexuality/reproduction and rare diseases, expanded neonatal screening, clinical tests and legal...

On April 29, the world celebrates "Undiagnosed Day" to give visibility to patients who have a rare disease that has not yet been diagnosed. To mark the date, the Undiagnosed Diseases Network International (UDNI) launched a global manifesto focused on...

The third edition of Conexões Raras, a quarterly newsletter from Casa dos Raros, is now in circulation. The publication, from January-March 2026, features an exclusive interview with the Minister of Health, doctor Alexandre Padilha, who...
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