The event
from November 29th to December 1st
Porto Alegre/RS
Hotel Plaza São Rafael
Target Audience
doctors, researchers, health professionals, patients with MPs and family members.
Date and place
De 29 de novembro a 1° de dezembro - Porto Alegre, RS
Faculty
Deadlines and Logistics
South MPS Symposium Programming 2024
preliminary program
International Invited
Jordi Cruz
(Barcelona-spain)
National Invited
Luiz Carlos Santana da Silva
(Belém - Pará)
29 November (night):
18:30 Opening table: news from the MPS network, from the Genetics for All Institute, from the Atlas Biosocial Institute, and the Casa dos Raos (Roberto Giugliani, Franciele Trapp, Deise Zanin, Antoine Daher) < /P>
Words of welcome from the guests (Jordi Cruz-Barcelona, Spain, and Luiz Carlos Santana da Silva-Belém, Pará)
19:30 Integration activity
20:00 welcome dinner
30 November (morning):
08:30 - 09:00 Life Stories and Lessons Learned (Moderator: Deise Zanin)
09:00 - 10:30 How to make society hear the demands of patients with MPs? Why do we build Sofia's house and what does it represent? (Jordi Cruz - Barcelona, Spain) (Moderator: Roberto Giugliani)
10:00 - 10:30 MUCOPOLISCARIDESIS PANORAMA in another region of Brazil (Luiz Carlos Santana da Silva - Belém, Pará) (Moderator - Carolina Fischinger)
10:30 - 11:00 AFFERENCE PHOTO - COFFEE - VISIT TO STANDS
11:00 - 12:00 Understanding genetic risks in MPs (Carolina Fischinger and Bibiana Oliveira)
12:00 - 12:30 Questions & Answers
12:30 - 13:45 Lunch
30 November (afternoon):
14:00 - 15:30 Workshop for common MPs:
Carpal tunnel syndrome (presenter to define)
MP pain (presenter to define)
Exercise (Presenter: Adriano Aurélio)
15:30 - 16:30 Research in progress and future perspectives (Fabiano Poswar and Roberto Giugliani)
16:30 - 17:00 Coffee
17:00 - 18:00 IABS Assembly (Coordination: Deise Zanin)
30 November (night):
19:30 –22: 00 Confraternization Dinner
01 December (morning):
up to 10:00 breakfast at the hotel and check-out
10:00 EXPENSE Bus from the hotel to outdoor activity at Farroupilha Park
11:00 Mobilization Act for MPS (Farroupilha Park)
12:00 Return to the hotel and farewells
